Living with Marfan Syndrome 04-23-17


Dr. Shaine Morris is a pediatric cardiologist from Texas Children's Hospital. Owen Gray is a youth ambassador for the Marfan Foundation and He speaks from experience since he is living with Marfan syndrome. With him is his mother, Amy Gray who is an advocate for the Marfan Foundation.

Marfan syndrome is a genetic disorder that affects the body’s connective tissues which hold our cells and organs together. They are also important in how our bodies develop throughout childhood. Owen talk about living with Marfan, how it changed his life and gave it a purpose. As a high school student looking to coach basketball at the college level, he is already a mentor making a difference on behalf of those living with Marfan. Raising awareness increases the amount of research going on but it also forms support groups which is just as important.

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